The Process of Predictive Testing: Before, During and After

“The stories in this section are from people going through the process of predictive testing.”

These stories are taken directly from a collection that was compiled and edited by Susan M Cox, PhD, in conjunction with the Huntington Society of Canada. The stories come from different sources including: a series of in-depth research interviews conducted by Dr. Cox with persons who proceeded with predictive testing in British Columbia in the mid 1990’s,  as well as those that were submitted in response to requests for personal perspectives on genetic testing from chapters of the Huntington Society of Canada. The material that is used and quoted in this section is taken verbatim from the collection, a complete version of which can be found here: http://www.huntingtonsociety.ca/english/uploads/Perspectives_Book.pdf.


When your load is lightened

“One week before his test results, Colin described how he first learned about Huntington Disease and eventually arrived at the decision to proceed with testing…”


Why walk on egg shells?

“Two weeks before her predictive test results, Regina described how she first learned about Huntington disease and eventually arrived at the decision to proceed with testing…”


A task to deal with

“Three weeks before test results, Gabriella described how she first learned about Huntington disease and eventually arrived at the decision to proceed with testing…”