Alternatives to Testing

Many individuals who are at risk for Huntington disease (HD) decide not to undergo predictive genetic testing. Just as there is a wide variety of reasons people decide to pursue predictive testing, there is also a wide variety of reasons people choose not to undergo testing including the lack of an available cure, preferring not to find out their future status and deciding that it is not the right time. The decision whether or not to pursue testing is very personal, and one that should not be rushed or made under pressure. In addition, genetic testing can be performed at a later date, and the option to undergo testing will remain open.

HD Resources

There are many other online websites and resources which provide information regarding HD in general, support groups in your area, research updates and opportunities to be involved in clinical trials.

Our Stories

We understand that learning that someone in your family has HD can be devastating. It can leave you with questions, concerns, and no idea where to turn next. Find about more about what others have done in your situation – you are not alone.

Family and Friends

Finding out that your loved one has HD, or may develop it in the future is incredibly hard. You may feel concern, shock and anxiety but at the same time want to help and support your loved one.
Learning more about the condition and the testing process can help you understand and prepare for what HD means for both of you now and in the future.