Research Discoveries

Since the discovery of the HD gene in 1993, there has been a dramatic increase in our knowledge about the underlying causes of the condition. In 1996 a mouse model of HD was developed, allowing us to find out more about how the HD protein causes damage in different parts of the body, as well as the many different cellular and neuronal processes affected. This information means that research can focus on effective intervention in the different pathways involved in HD symptoms, and test potential therapies to treat the disorder.

Dr. Michael Hayden, a Professor at the University of British Columbia, has dedicated his career to understanding the development of HD and finding a way to cure it.

“When we started working on Huntington disease, the future was dark and patients and families felt hopeless,” says Dr. Hayden. “Today, that has all changed.”

Watch a short documentary video of Dr. Hayden discussing research into HD, and potential future therapies for the condition.

Research Discoveries

Dr. Michael Hayden, a Professor at the University of British Columbia, has dedicated his career to understanding the development of HD and finding a way to cure it.

Testing for HD

The decision about whether or not to have testing for HD is a very complex and personal one. For some, the test provides information about their future. Others choose not to undergo testing. There are no right or wrong choices. We will help you to make an informed choice regarding testing, and support you through the whole process.

HD Resources

There are many other online websites and resources which provide information regarding HD in general, support groups in your area, research updates and opportunities to be involved in clinical trials.