Research and clinical trials are an essential component of understanding and developing therapies for HD. Participating in such trials may involve undergoing physical examinations, answering questionnaires and surveys, testing a new drug for treatment or providing samples for research.
If you are interested in being contacted about opportunities to participate in research regarding HD please visit HDtrials.org
Dr. Michael Hayden, a Professor at the University of British Columbia, has dedicated his career to understanding the development of HD and finding a way to cure it.
Testing for HD
The decision about whether or not to have testing for HD is a very complex and personal one. For some, the test provides information about their future. Others choose not to undergo testing. There are no right or wrong choices. We will help you to make an informed choice regarding testing, and support you through the whole process.
There are many other online websites and resources which provide information regarding HD in general, support groups in your area, research updates and opportunities to be involved in clinical trials.