Whether or not you decide to undergo testing, and regardless of your test result, learning more about Huntington disease is important. The more informed you are, the better you will be able to understand what the disease is all about. Learning and understanding how the disease progresses, and what it might mean for you and your loved ones, will help you be prepared and adjust to any changes you, or your family, may experience.
Dr. Michael Hayden, a Professor at the University of British Columbia, has dedicated his career to understanding the development of HD and finding a way to cure it.
Testing for HD
The decision about whether or not to have testing for HD is a very complex and personal one. For some, the test provides information about their future. Others choose not to undergo testing. There are no right or wrong choices. We will help you to make an informed choice regarding testing, and support you through the whole process.
There are many other online websites and resources which provide information regarding HD in general, support groups in your area, research updates and opportunities to be involved in clinical trials.